Our Story

FAMOHIO’s Story

Who We Are

2021 Event Update

For more than 25 years nearly 400 adults and children in the bleeding disorder community from across Ohio have come together to share an incredible weekend of education, activities, networking and fun. Unfortunately last year, due to the pandemic, we had to make a last minute decision and move our program online for one night in October.

As we began plans for this year we were uncertain what life would be like so in order to keep everyone safe we made the difficult decision to host a Virtual Event again.

Please note, this will be no ordinary weekend and it certainly won’t be like any online meeting you’ve attended this past year. We promise you will learn quite a bit, reconnect with friends, make some new ones and have some fun!

The final agenda is being developed so watch for more details soon. The programs will be held Friday, July 30th, Saturday, July 31st and Sunday, August 1st.  The nice thing is it is structured so you can join the programs that are of interest to you.  You will not be required to be on the entire time, although we hope you will join us for as much of the weekend as you can.

We are very excited to announce that Denny Baker, a Ventriloquist who specializes in safety programs, in addition to comedy, will be back again with his friend Arnold for a few programs.

We appreciate the support of our sponsors – Platinum level – Cascade and Takeda; Gold level – Novo Nordisk; Silver level – CSL, Nationwide Children’s and UniQure; Bronze level – Accredo, Bayer, Biomarin, Genentech, Grifols, Octapharma, Pfizer, Sanofi Genzyme and Spark (additional sponsors are pending).

Thanks to their generosity we will be shipping materials so you can learn more about their companies and products. Additionally we will be sending out t-shirts as well as some other surprises.

In order to receive the t-shirts and swag materials you must register by Sunday, July 11th at 11pm.

The free registration can be done until Monday, July 26th at 11pm.

Eventbrite Registration Link

If you have any questions regarding your registration, please contact: Lisa Raterman at FAMOhioInfo@gmail.com or 614-344-1075.

Gather

For nearly 30 years, approximately 400 adults and children in the bleeding disorder community from across Ohio have come together to share an incredible weekend of education, activities, networking, and fun! The board of FAMOHIO, Inc. starts planning each January meeting quarterly or more frequently, to develop the best weekend possible.

In 2020, the FAMOHIO annual meeting was held virtually as an educational evening event in response to the Covid 19 pandemic restrictions. The 2021 annual meeting will again be held virtually to ensure the safety of our community. The 2021 activities will take place intermittently over the weekend of July 30-August 1, 2021. Don’t miss this exciting opportunity to advance your education and knowledge, assist those new to the community, and to share camaraderie with old and new friends.

Awards

FAMOHIO,Inc. annually recognizes individuals and organizations that have made a significant contribution to or impact in the bleeding disorders community. If you know of an individual or organization, deserving such an award, please submit a nomination identifying the person and explaining why that person should receive an award to FAMOhioInfo@gmail.com.

Volunteer

Many volunteer hours of hard work are donated by dozens of community members, interested parties, industry groups and the FAMOHIO, Inc. Board of Directors.

FAMOHIO, INC. Founding Fathers

In March of 1992, during the AIDS (acquired immunodeficiency syndrome) crises, six men came together to discuss their future and the future of their blood brothers. These men all carried the diagnosis of hemophilia and as a result of treatment for hemophilia had contracted HIV (human immunodeficiency virus). Instead of wallowing in self-pity they channeled their anger and feelings toward a positive goal. These men believed education was the key to ensuring the future for all people affected with bleeding disorders. In the summer of 1992, their creation, a state-wide, educational symposium was held called FAMOHIO. That year, FAMOHIO was the acronym for “first annual meeting of hemophiliacs in Ohio.” Going forward, FAMOHIO became known as “family annual meeting of hemophiliacs in Ohio.”

In the beginning the attendees generally carried the diagnosis of hemophilia. As time progressed the meeting grew in size to include people and families living or treated in Ohio with numerous bleeding disorders. The FAMOHIO founders believed that an annual meeting of people/families with bleeding disorders provided opportunities for shared information and increased knowledge through education and camaraderie. The current FAMOHIO board shares the founders’ beliefs.

The positive rippling effects of FAMOHIO are difficult to quantify. However, attendees largely agree that the FAMOHIO experience provides increased knowledge and a better understanding of how to live with a bleeding disorder.